Ir al contenido

Documat

Conceptualising good mental health for people with intellectual disabilities: An inclusive delphi study

  • Sophie Komenda-Schned [1] ; Sarah Jasmin Landskron [1] ; Paula Moritz [1] ; Nicole Braunstein [3] ; Josef Hochmeister [3] ; Karin Riegler [3] ; Robert Saugspier [3] ; Brigitte Lueger-Schuster [1] ; Luis Salvador-Carulla [2] Árbol académico ; Elisabeth Lucia Zeilinger [1]
    1. [1] University of Vienna

      University of Vienna

      Innere Stadt, Austria

    2. [2] University of Canberra

      University of Canberra

      Australia

    3. [3] Bundesverband der Lebenshilfe Österreich, Vienna, Australia
    Mostrar afiliaciones +
  • Localización: International journal of clinical and health psychology, ISSN 1697-2600, Vol. 25, Nº. 3, 2025, págs. 61-70
  • Idioma: inglés
  • DOI: 10.1016/j.ijchp.2025.100601
  • Enlaces
  • Resumen

    • Background Currently, there is no conceptualisation of good mental health for people with intellectual disabilities (ID). To develop an initial shared understanding of good mental health in this population, an inclusive Delphi study with two survey rounds was conducted.

      Methods The Delphi study comprised a total of N = 60 participants in the first round, and 53 in the second round. In sum, 23 experts with ID and 37 mental health experts were included. The Delphi questionnaire applied a universal design, maximising accessibility for experts with and without ID. Participants were asked to rate the relevance of each item for good mental health of people with ID. People with ID served as co-researchers throughout the research process.

      Results In both survey rounds, all items were rated as important for good mental health of people with ID (weighted median ≥ 3 out of 5). In a structural synthesis, the following factors were found to be important: (1) being part of the community, (2) adequate support, (3) social contacts, (4) communication, (5) working and living environment, (6) keeping the body healthy, (7) no mental disorders, (8) healthcare, (9) psychosocial functioning. As the broadest theme, psychosocial functioning included six subthemes, such as emotions, autonomy and self-concept, and doing something meaningful.

      Conclusions This study provides a foundational step towards developing a more inclusive understanding of good mental health for people with ID. The active involvement of co-researchers underscores the value of participatory methods in shaping research outcomes.

  • Referencias bibliográficas
    • Albaum, C., Chan, V., Sellitto, T., Vashi, N., Hastings, R., & Weiss, J. (2021). Redressing the balance: A systematic review of positive...
    • Ali, S., Harrichand, J. J. S., Shillingford, M. A., & Herbert, L. (2023). A qualitative investigation of Guyanese American perceptions...
    • American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders. Author.
    • Andresen, E. M., Vahle, V. J., & Lollar, D. (2001). Proxy reliability: health-related quality of life (HRQoL) measures for people with...
    • Bailey, D.-A., Ford, L., & Knight, V. F. (2022). Exploring perceptions of positive mental health in young adults with intellectual disabilities....
    • Bertelli, M. O., Salerno, L., Rondini, E., & Salvador-Carulla, L. (2021). Integrated care for people with intellectual disability. In...
    • Blaise, M., Schroeder, M., Suhrcke, M., Komenda-Schned, S., Zeilinger, E. L., & Weber, G. (2025). Exploring self-determination and satisfaction...
    • Buck, A. S., Chapman, R., Krahn, G. L., Brown, C., Gertz, B., Havercamp, S. M., & The Ohio State University Nisonger RRTC on Health and...
    • Chinn, D. (2014). Critical health literacy health promotion and people with intellectual disabilities. Asia-Pacific Journal of Health, Sport...
    • Claes, C., Vandevelde, S., Van Hove, G., van Loon, J., Verschelden, G., & Schalock, R. (2012). Relationship between self-report and proxy...
    • Cooper, S.-A., McLean, G., Guthrie, B., McConnachie, A., Mercer, S., Sullivan, F., & Morrison, J. (2015). Multiple physical and mental...
    • Cooper, S.-A., Smiley, E., Morrison, J., Williamson, A., & Allan, L. (2007). Mental ill- health in adults with intellectual disabilities:...
    • Cummins, R. A. (2002). The validity and utility of subjective quality of life: A reply to Hatton & Ager. Journal of Applied Research in...
    • Di Lorito, C., Birt, L., Poland, F., Csipke, E., Gove, D., Diaz-Ponce, A., & Orrell, M. (2017). A synthesis of the evidence on peer research...
    • Donkoh, S., & Mensah, J. (2023). Application of triangulation in qualitative research. Journal of Applied Biotechnology and Bioengineering,...
    • Embregts, P. J. C. M., Zijlmans, L. J. M., Gerits, L., & Bosman, A. M. T (2019). Evaluating a staff training program on the interaction...
    • Emerson, E., & Hatton, C. (2008). Self-reported well-being of women and men with intellectual disabilities in England. American Journal...
    • Fledderus, M., Bohlmeijer, E. T., Smit, F., & Westerhof, G. J. (2010). Mental health promotion as a new goal in public Mental health care:...
    • Geukes, C., Bruland, D., & Latteck, A¨ .-D. (2018). Health literacy in people with intellectual disabilities: A mixed-method literature...
    • Griebler, R., Griebler, U., Weber, G., Klerings, I., & Leuprecht, E. (2021). Gesundheitliche situation von menschen mit intellektuellen...
    • Havercamp, S. M., Barnhill, L. J., Bonardi, A., Chapman, R. A., Cobranchi, C., Fletcher, R. J., Rabidoux, P., Seeley, J. R., Tasse, M. J.,...
    • Heale, R., & Forbes, D. (2013). Understanding triangulation in research. Evidence-Based Nursing, 16(4). https://doi.org/10.1136/eb-2013-101494,...
    • IBM Corp. (2013). IBM spss statistics (Version 29.0.1.0) [Computer software]. IBM Corp. Jane-Llopis, E., & Barry, M. M. (2005). What makes...
    • Johansson, A., Brunnberg, E., & Eriksson, C. (2007). Adolescent girls’ and boys’ Perceptions of mental health. Journal of Youth Studies,...
    • Joyce, A., Campbell, P., Crosbie, J., & Wilson, E. (2024). Workplace structures and culture that support the wellbeing of people with...
    • Kawachi, I., & Berkman, L. F. (2001). Social ties and mental health. Journal of Urban Health, 78(3), 458–467. https://doi.org/10.1093/jurban/78.3.458
    • Keyes, C. L. M. (2005). Mental illness and/or Mental health? Investigating axioms of the complete State model of health. Journal of Consulting...
    • Kocman, A., & Weber, G. (2018). Job satisfaction, quality of work life and work motivation in employees with intellectual disability:...
    • Komenda-Schned, S., Landskron, S. J., Moritz, P., Braunstein, N., Hochmeister, J., Riegler, K., Saugspier, R., Hillenkamp, L., Lueger-Schuster,...
    • Komenda-Schned, S., Landskron, S. J., Moritz, P., Brunevskaya, N., Santambrogio, J., Salvador-Carulla, L., Lueger-Schuster, B., & Zeilinger,...
    • Komenda-Schned, S., Moritz, P.C., Landskron, S.J., & Zeilinger, E.L. (2024). Mental health in people with intellectual disabilities—An...
    • Komenda-Schned, S., Moritz, P., Landskron, S. J., Herscovici, A. R., Schomburg, C., Lehner, J., Lueger-Schuster, B., Salvador-Carulla, L.,...
    • Linstone, H. A., & Turoff, M. (2002). The delphi method: techniques and applications. Addison-Wesley. https://www.foresight.pl/assets/downloads/publications/Tur...
    • Lippold, T., & Burns, J. (2009). Social support and intellectual disabilities: A comparison between social networks of adults with intellectual...
    • Lunsky, Y., & Benson, B. A. (2001). Association between perceived social support and strain, and positive and negative outcome for adults...
    • Lutz, D. L., & Fisher, K. R. (2023). Personalising support through communication between people with intellectual disabilities and their...
    • Lyons, A., Pitts, M., & Grierson, J. (2013). Factors related to positive mental health in a stigmatized minority: an investigation of...
    • Mayring, P., & Fenzl, T. (2019). Qualitative Inhaltsanalyse. In N. Baur, & J. Blasius (Eds.), Handbuch methoden der empirischen sozialforschung...
    • Meins, W. (1993). Prevalence and risk factors for depressive disorders in adults with intellectual disability. Australia and New Zealand Journal...
    • Meuser, M., & Nagel, U. (2005). ExpertInneninterviews—Vielfach erprobt, wenig bedacht [Expert Interviews – Widely Tested, Seldom Considered]....
    • Meyers, A. R., & Andresen, E. M. (2000). Enabling our instruments: accommodation, universal design, and access to participation in research....
    • Mezzich, J. E., Salloum, I. M., Cloninger, C. R., Salvador-Carulla, L., Kirmayer, L. J., Banzato, C. E., Wallcraft, J., & Botbol, M. (2010)....
    • Moritz, P. C., Komenda-Schned, S., Hillenkamp, L., Landskron, S. J., & Zeilinger, E. L. (2024). Psychische gesundheit bei menschen mit...
    • Munde, V., & Tillmann, V. (2022). Partizipative Forschung. Umsetzungsbeispiele und zukunftsperspektiven. Teilhabe, 2(61), 74–81.
    • Munir, K. M. (2016). The co-occurrence of mental disorders in children and adolescents with intellectual disability/intellectual developmental...
    • Nota, L., Ferrari, L., Soresi, S., & Wehmeyer, M. (2007). Self-determination, social abilities and the quality of life of people with...
    • Perry, J., Linehan, C., Kerr, M., Salvador-Carulla, L., Zeilinger, E., Weber, G., Walsh, P., Lantman-de-Valk, H. V. S., Haveman, M., Azema,...
    • Piantedosi, D. K., & O’Shea, A. (2023). The role of people with intellectual disability in intellectual disability research: A systematic...
    • Razza, N. J., & Tomasulo, D. J. (2005). Healing trauma: the power of group treatment for people with intellectual disabilities. American...
    • Ribenfors, F., Blood, L., Hatton, C., & Marriott, A. (2025). It’s got its ups and downs”: what people with intellectual disabilities living...
    • Rittmannsberger, D., Kocman, A., Weber, G., & Lueger-Schuster, B. (2019). Trauma exposure and post-traumatic stress disorder in people...
    • Rojas, M. (2006). Life satisfaction and satisfaction in domains of life: is it a simple relationship? Journal of Happiness Studies, 7(4),...
    • Salvador-Carulla, L., Lukersmith, S., & Sullivan, W. (2017). From the EBM pyramid to the Greek temple: A new conceptual approach to guidelines...
    • Salvador-Carulla, L., Ruiz, M., & Saavedra, J. E. (2012). Promoting wellbeing in persons with disabilities. International Journal of Person...
    • Santoro, S. L., Donelan, K., & Constantine, M. (2022). Proxy-report in individuals with intellectual disability: A scoping review. Journal...
    • Schanze, C. (2017). Der sich und andere behindernde mensch mit lernschwierigkeiten [The Person with Learning Difficulties Who Hinders Themselves...
    • Schmidt, S., Power, M., Green, A., Lucas-Carrasco, R., Eser, E., Dragomirecka, E., & Fleck, M. (2010). Self and proxy rating of quality...
    • Scott, H. M., & Havercamp, S. M. (2014). Mental health for people with intellectual disability: the impact of stress and social support....
    • Siedlecki, K. L., Salthouse, T. A., Oishi, S., & Jeswani, S. (2014). The relationship between social support and subjective well-being...
    • Simoes, C., & Santos, S. (2016). The quality of life perceptions of people with intellectual disability and their proxies. Journal of...
    • Smith, M., Manduchi, B., Burke, E., Carroll, R., McCallion, P., & McCarron, M. (2020). Communication difficulties in adults with intellectual...
    • Sullivan, W. F., Heng, J., Salvador-Carulla, L., Lukersmith, S., & Casson, I. (2018). Approaches to primary care of adults with intellectual...
    • Nations, United (2006). Convention on the rights of persons with disabilities. United Nations.
    • van Herwaarden, A., Peters-Scheffer, N., & Didden, R. (2022). Eudaimonic well-being in individuals with mild to moderate intellectual...
    • Vicente, E., Guillen, V. M., Gomez, L. E., Ibañez, A., & Sanchez, S. (2019). What do stakeholders understand by self-determination? Consensus...
    • Vicente Sanchez, E., Coma-Rosello, Teresa, Mumbardo-Adam, Cristina, & Simo- Pinatella, D. (2022). Self-determination and people with intellectual...
    • Walmsley, J., Strnadova, I., & Johnson, K. (2018). The added value of inclusive research. Journal of Applied Research in Intellectual...
    • Whittle, E. L., Fisher, K. R., Reppermund, S., Lenroot, R., & Trollor, J. (2018). Barriers and enablers to accessing mental health services...
    • Wigham, S., & Emerson, E. (2015). Trauma and life events in adults with intellectual disability. Current Developmental Disorders Reports,...
    • World Health Organization. (2004). Promoting mental health: concepts, emerging evidence, practice (Summary report). WHO.
    • World Health Organization. (2018). International classification of diseases (11th Revision). https://icd.who.int/en.
    • Yong, A. (2023). Home environment design theories and models related to the occupational performance, participation and well-being of people...
Fundación Dialnet

Mi Documat

Opciones de artículo

Opciones de compartir

Opciones de entorno